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Welcome
Introduction
How
to register as a tissue donor
Raising awareness of all those affected by MS
Donation
of Tissue
Requesting
tissue for research on multiple sclerosis
Promoting the Tissue Bank in the research community
The Bank
Statement
Articles
Links:
Department
of Cellular and Molecular Neuroscience
Department
of Neuropathology
Multiple Sclerosis Society of Great
Britain and Northern Ireland
International Federation of Multiple Sclerosis
Societies
E-mail: ukmstissuebank@imperial.ac.uk
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the Bank Statement
News from
The UK Multiple
Sclerosis Tissue Bank
.
(The Bank Statement is also available as a PDF document.)
ISSUE 1
Welcome to our first newsletter, designed with
you in mind. Some of you will have already registered as donors, while others
will be in the process of deciding whether it is right for you; or may be,
you are the relative or friend of someone who has donated tissue. We hope
that our Bank Statement will keep all of you up to date with what is
going on here at the Tissue Bank.
In this
issue find out about...
- the aims of the Tissue Bank
- the ways in which the Tissue Bank is raising
its profile
- the number of people that have registered as
donors
- fulfilling the wishes of those who have
already contributed to research
- the research that is using tissue donated to
the Tissue Bank
- our new telephone numbers and your new donor
card
- the things we would like you to tell us about
What does the tissue bank do?
In 1998, the Multiple
Sclerosis Society awarded a 5-year grant to Imperial College School of
Medicine at Charing Cross Hospital in London
to enable the setting-up of a national MS Tissue
Bank. The aim of this centralised facility is:
- to co-ordinate the collection of tissue
donated for MS research from people that had MS and from people that did
not have MS, and
- to distribute samples of the tissue to
scientists conducting research into the causes and treatment of MS.
The Tissue Bank makes available high quality samples of tissue for
research into multiple sclerosis.
Letting people know about our work
Since the very beginning of setting-up this brand new facility, we have felt
it important to share with everyone interested in multiple sclerosis the work
of the Tissue Bank and the fundamental importance of tissue banking to
research. We want people to have all the information they might need to
decide on an individual basis whether becoming a donor is right for them.
Over the last three years we have raised our profile by:
- giving talks at over 50 local branches of the
MS Society
- publishing articles and letters in the MS
Society's MS Matters and TeaMSpirit,
- presenting our work at conferences for
specialist MS Nurses
- having our articles published in specialist
and general healthcare newsletters
- writing individually to each of the 484
neurologists working in the UK
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